Position Description

The Chair will provide inclusive, strategic leadership to the Board, ensuring strong governance, financial sustainability and delivery of the organisation’s mission. Working closely with the Chief Executive, they will shape strategic direction, support effective decision making and act as an external ambassador.

Key responsibilities:

• Lead the Board, fostering a collaborative, high-performing and inclusive culture.
• Ensure robust governance, compliance and oversight of strategy, risk and performance.
• Support and constructively challenge the Chief Executive, maintaining clear governance boundaries.
• Drive Board development, including succession planning, appraisal and skills diversification.
• Act as an ambassador, building relationships with stakeholders, partners and funders.

Through this leadership, the Chair will strengthen the organisation’s reach, influence and sustainability, improving outcomes for those affected by genetic, rare and undiagnosed conditions.

Selection Criteria

The successful candidate will need to demonstrate:

• Strong strategic leadership and governance experience, ideally at the Board level.
• Experience as a Chair or senior Non-Executive Director (desirable).
• A solid understanding of governance, risk management and organisational performance.
• The ability to think strategically, guiding long-term direction and navigating complexity.
• Excellent communication and interpersonal skills, with the ability to influence and build consensus.
• A clear commitment to equity, diversity and inclusion, fostering an open Board culture.
• The credibility and confidence to act as an ambassador with a wide range of stakeholders.
• An understanding of or interest in the health, rare disease or charity sector.
• A strong alignment with the organisation’s mission and purpose, with a passion for driving meaningful impact.

How to Apply

Please click the website link HERE to be redirected to the Peridot Partners website, where you can find full candidate profile details and register your interest to apply.